Sarhea Sunshine

Did You Know

Cystic Fibrosis (CF) is the most common, fatal genetic disease in the United States?

1 in 31 (more than 10 million) Americans are symptom-less carriers of the defective CF gene?

Approximately 1000 babies are born with CF each year?

This defective CF gene can be passed on to your children and your children's children?

When both parents carry the defective CF gene, there is a 25 percent chance that each child conceived

will have CF and a 50 percent chance of also being a carrier?

Only 40 percent of those alive with CF today are over the age of 18?

Tremendous progress is being made toward a cure?

Your help today not only helps those currently alive with CF but the countless number of babies yet to inherit this devastating disease?

We need your help? EVERY DOLLAR helps. Please make a tax deductible donation to CFF today. Thank You!

Great Strides 2009

THANK YOU, THANK YOU, THANK YOU!!!

The Greater Cincinnati and Northern Kentucky Great Strides Walk was a huge success in spite of a downed economy and threatening weather. Even though the turn out was slightly down in numbers, the spirit of excitement, support and desire to win the fight against Cystic Fibrosis is stronger than ever.

Even though the Great Strides "Walk" has now come and gone, we still need to keep moving forward and raising funds. The need for continued financial support and spreading awareness goes on 24/7/365.

So please, join team Sarhea Sunshine in the fight against Cystic Fibrosis by making a tax deductible donation to the Cystic Fibrosis Foundation. Please click in any one of the Great Strides boxes to the left.

The Great Strides Campaign is to raise money to support the incredible research and development efforts the Cystic Fibrosis Foundation is making toward treatments and a cure for Cystic Fibrosis.

A CURE? That's right! The Cystic Fibrosis Foundation and the many scientists, doctors, researchers and pharmaceutical developers are not only successful in creating and improving treatments for the symptoms of CF, but are now seeing very positive results in addressing the basic defect of the mutated gene!

The positive findings and results being produced by this incredible irregular gene addressing, will not only lead the way to a cure for CF, but will also play a major role in the quest for a cure for the many other genetic disorders our society suffers from.

As you can see, your gift and support of the Cystic Fibrosis Foundation is needed and more meaningful now than ever. Please, join us in the fight against CF today!

Thank You! Mike

Why We Do What We Do?

We hear the good news quite often that tremendous progress is being made toward treatments and advancement toward a cure for CF. It's very encouraging and gives tremendous hope that the median age of survival is now 37.4 years.

It's even more exciting and encouraging hearing that the basic gene defect is being successfully addressed and a cure for CF is just barely beyond our fingertips.

It is however, devastating and heart breaking when the reality of this disease rises up and strikes with the final blow.

March 29th, 2009, sweet little Anna Reno was welcomed into the loving arms of Jesus where she will never struggle again. Anna was only eight years old when she pre-maturely and unwillingly lost her battle with CF. Please see the video below and visit Anna's Army website.

Anna, you will always be loved and missed. We will continue to do what we do until there is a cure. We all belong to Anna's Army!

Sarhea is now 18 months old and is still healing from her 5th surgery last month. She had some stomach repair surgery at her G-Tube site which had her in Children's hospital for four days. Unfortunately, due to an unexpected complication a few days after being sent home, she had to be re-admitted and spent an additional week in the hospital. Sarhea is looking forward to seeing all of you at the Great Strides Walk of 2009.

65 Roses

"65 Roses" is what some children with cystic fibrosis (CF) call their disease because the words are much easier for them to pronounce.

Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social and service organization seeking financial support for CF research. Mary's 4-year-old son, Richard, listened closely to his mother as she made each call.

After several calls, Richard came into the room and told his Mom, "I know what you are working for." Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had cystic fibrosis. With some trepidation, Mary asked, "What am I working for, Richard?" He answered, "You are working for 65 Roses." Mary was speechless.

He could not see the tears running down Mary's cheeks as she stammered, "Yes Richard, I'm working for 65 Roses."

Since 1965, the term "65 Roses" has been used by children of all ages to describe their disease. But, making it easier to say does not make CF any easier to live with. The "65 Roses" story has captured the hearts and emotions of all who have heard it. The rose, appropriately the ancient symbol of love, has become a symbol of the Cystic Fibrosis Foundation.

65 Roses^® is a registered trademark of the Cystic Fibrosis Foundation.

The Weiss brothers, Richard, 5; Arthur, 7 and
Anthony, 16 months.

Did You Know

The New York Times

Tunes While You're Here. Click the song you want or just click play

Babysitting Sarhea Slideshow. Click to Play

"Dying Young" The Reality of Cystic Fibrosis

Head First CFF Benefit Slideshow

Sarhea Sunshine Song and Slideshow

Hope! Breathe 4 Tomorrow Foundation

Did Someone Say Cure?

65 Roses

Bella Hairstyles Cut-A-Thon

Bella Hairstyles Cut-A-Thon 2009

Sarhea Sunshine Day at Texas Roadhouse Milford

Great Strides 2009

Great Strides 2009

Anna's Army Day, Great Strides Walk Hillsboro, OH April 17, 2009

Why We Do What We Do?

Anna Reno

Cystic Fibrosis Foundation

Cystic Fibrosis Foundation

VX770-Addressing The Basic Defect

Boomer

New Hope

Celine Dion for CF

Tammy Cochran

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